sick child

‘What the heck is going on? Have we been robbed?!’ I walk through an ocean of toys and books. My husband and baby are hidden among thrown sofa cushions. Sheer panic sets in.’

“‘She’s fallen asleep. Should I carry her to bed?’ Lunchtime. My phone pings again. ‘She’s woken up. What should I give her for lunch?’ I tell him she likes the pre-made pouches of baby food in the cupboard. Another text. ‘I can’t find the pouches.’ I can’t wait for Daddy to realize that staying at home isn’t all about box sets and playtime.”

‘The doctor said, ‘The parents need to understand there is no chance of their daughter having a meaningful life.’ I thought, ‘My daughter has meant more to me in the last 2 days than you will EVER mean to me.’

“What would our daughter have to do to be meaningful? Would she have to talk? Would she have to be able to solve math problems or perform in the school play? Graduating? Getting a job? Getting married? At what point would the doctor say, ‘Ok, you are meaningful now.”

For our best love stories, subscribe to our free email newsletter: