Skeletal Dysplasia

‘We sat our children, 8 and 3, down. ‘Your sister’s bones didn’t grow like yours. She could die during birth.’ They couldn’t stop crying.’: Mom births miracle baby with Skeletal Dysplasia

“The size of her head was measuring 39 weeks while the rest of her body wasn’t. The doctor slid a paper with information on it. ‘We need to induce you.’ I didn’t sleep the night before. At 5 a.m. we made the 45-minute drive to the hospital to find out I was already in active labor, and I was positive for Strep. There wasn’t a dry eye in the delivery room.”

‘Your daughter will never be more than 2 feet tall.’ My husband and I broke down in tears. ‘…If she survives.’: Mom births baby with rare Thanatophoric Dysplasia, ‘I will never give up on her’

“The news broke me and honestly ruined my pregnancy. I prayed our baby girl would grow, that her little chest would expand to survive this birth. I wanted Paisley to have a life, no matter if it was only for a few seconds or a few years. She deserved the world and I was determined to give it to her.”

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