skin condition

‘This is when my daughter is most beautiful, covered in layers of extra skin. Celebrate her, instead of giving me pity.’: Mom of daughter with Harlequin Ichthyosis wishes people would ‘stare at her beauty’ instead of ‘hiding their stares’

“I remember vividly the first time Anna opened her eyes. She stared with such intent that I couldn’t bring myself to look away. The swelling from her eye lids had finally gone, and she opened her eyes and stared directly at me. I get mesmerized by the beauty in her skin. I know she was made for something special.”

‘Minutes after being born the doctors noticed my skin peeling from just being wrapped in the typical blanket they use with newborns’. Woman describes the pain of living with Recessive Dystrophic Epidermolysis Bullosa

“There’s often the misconception my illness is not a big deal and it’s ‘just a skin condition.’ If my illness was as minor as people tend to believe I wouldn’t have lost the ability to walk over the years, or my hands wouldn’t be webbing from years of scarring and friction.”

‘I noticed a line emerging under my nail. It quickly passed to each finger. I was the ugly girl turning white.’: Woman with vitiligo shows her ‘true beauty’ after 32 years of hiding, ‘no longer lives life in the shadows’

“It was spreading FAST to my feet, my mouth, my gums. My insecurities even faster. My parents never asked me how I felt. They just handed me a tube of foundation and told me to keep my secret hidden. I was the only girl in 6th grade wearing makeup. They called me panda bear, monster, dalmatian, and oreo. I didn’t want to wear it. I had no choice.”

 Share  Tweet