skin condition

‘I checked the mail to find a strange woman asking my husband for child support. 8 years into marriage, I found out he had another daughter the exact age as our 6-year-old.’: Woman with vitiligo shares incredible journey, ‘Never give up on your dreams’

“At 17, I got pregnant. Life completely changed. After discovering my husband’s double life, I went into the shower to find a white spot under my arm. I tried to scrub it off, but it wouldn’t move. Every time I checked, the spot was bigger and bigger. ‘Is it cancer? Is it contagious?’ I asked the doctor.’There’s no cure.’ As he pulled up pictures on his laptop, I began to cry. ‘I’m going to be a monster.’ Here I was, my marriage ending, horrified no one would ever want me again.”

‘You look like you’ve been mauled by a gorilla. What happened to you?’ I lied. She didn’t deserve to know.’: Woman with terminal genetic condition embraces her scars, ‘Look how hard my body works to keep me alive!’

“I was leaving the grocery store. An older woman was staring at me. I felt the familiar rush of blood heat my cheeks and anger rise in my throat. Instead of asking questions about a body that wasn’t hers, she smiled widely. ‘I think I saw you in a magazine!’ I exhaled and laughed, confirming that she had. My scarring looks like burns. This is ‘the worst disease you’ve never heard of.'”

‘Oh, it’s just my skin.’ I’d stare in the mirror, worrying how to look as pretty as the other girls.’: Young woman born with vitiligo skin condition develops eating disorder to look as good as her peers, finally learns ‘recovery is worth it’

“‘As soon as someone notices something is wrong, I will stop.’ I was waiting for the attention. Girls would run away from me because they did not want to ‘catch my disease.’ Every day, while throwing away my lunch in school, or doing sit-ups in my bedroom, I started to feel proud. I was 13, and weighed 60 pounds. Your passions cannot be accomplished if you are struggling yourself.”

‘This is when my daughter is most beautiful, covered in layers of extra skin. Celebrate her, instead of giving me pity.’: Mom of daughter with Harlequin Ichthyosis wishes people would ‘stare at her beauty’ instead of ‘hiding their stares’

“I remember vividly the first time Anna opened her eyes. She stared with such intent that I couldn’t bring myself to look away. The swelling from her eye lids had finally gone, and she opened her eyes and stared directly at me. I get mesmerized by the beauty in her skin. I know she was made for something special.”

‘Minutes after being born the doctors noticed my skin peeling from just being wrapped in the typical blanket they use with newborns’. Woman describes the pain of living with Recessive Dystrophic Epidermolysis Bullosa

“There’s often the misconception my illness is not a big deal and it’s ‘just a skin condition.’ If my illness was as minor as people tend to believe I wouldn’t have lost the ability to walk over the years, or my hands wouldn’t be webbing from years of scarring and friction.”

‘I noticed a line emerge under my nail. It quickly passed to each finger. I was the ugly girl turning white.’: Woman with vitiligo shows ‘true beauty’ after 32 years of hiding, ‘I no longer live in the shadows’

“At the pool, a boy screamed, ‘‘Look at her feet!’ My parents never asked me how I felt. They just handed me a tube of foundation and told me to keep my secret hidden. I was the only girl in 6th grade wearing makeup. They called me panda bear, monster, dalmatian, and Oreo. I didn’t want to wear it. I had no choice.”

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