“I remember vividly the first time Anna opened her eyes. She stared with such intent that I couldn’t bring myself to look away. The swelling from her eye lids had finally gone, and she opened her eyes and stared directly at me. I get mesmerized by the beauty in her skin. I know she was made for something special.”
‘This is when my daughter is most beautiful, covered in layers of extra skin. Celebrate her, instead of giving me pity.’: Mom of daughter with Harlequin Ichthyosis wishes people would ‘stare at her beauty’ instead of ‘hiding their stares’
‘I rushed to the hospital. ‘I’ve never seen anything like this,’ the surgeon said. Our pregnancy checkup had gone well. There was never a reason to believe something was wrong. Our excitement turned to disbelief.’
“Her skin was pulled so tightly that her eyelids had flipped inside out. We were informed her limbs could suddenly detach on their own. Every day, we faced a new challenge.”
‘His skull looked as thin as a piece of paper. We were given the option to terminate at 7 months pregnant. He’s not dead yet.’
“The next day I got the call. ‘Jessica, can you come into the doctor’s office tonight?’ I was just heading out the door for work, but she said, ‘Jessica, you need to come in now please’.”
‘Her skin hardened within seconds. It began to split. My husband’s silence scared me.’: Mom says daughter born with Harlequin Ichthyosis is ‘beauty in the purest form’
“He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’ Broken is the only way to describe the feeling as they placed her in my arms. They had never seen anything like this. She was fine; everything was perfect, and then it wasn’t. But Anna was meant for me, and I for her, and together, we will show the world what true beauty is.”
‘Honey, something’s wrong.’ Our baby’s skin was marbled and black. I had no idea what was going on.’: Mom’s son diagnosed with extremely rare skin condition CMTC, loves his ‘special skin’
“I’ll never forget my response. ‘I’m sure it’s just a bruise.’ At first, every test came back ‘normal,’ doctors said it was just an ‘injury.’ We were told a list of things to do and sent on our way. Until we learned it was an extremely rare condition with less than 500 cases in. the. world. How does one process this sort of rarity?! In my mind he was the most beautiful thing I’d ever laid my eyes on. My rainbow baby. But, would he be OK? I was euphoric and crushed at the same time.”
‘It is not my job to be a decoration at the beach’: Strangers unite to write ‘hurtful words’ on each other to ‘wash away’ negativity, celebrate their ‘bikini bodies’
“We found there is a common bond, among every single one of us, regardless of body type, that we have been shamed by others, and it was time to wash those words away.”
‘Our baby had a head full of hair — WHITE AS SNOW’: Mom’s shocked reaction to albino newborn
“My daughter told me her sister was a snow fairy, and informed me she was related to Elsa. I should have known children see no differences.”
‘My dog was so persistent’: Rescue dog detects cancer on owner’s nose, saves her life
“She senses when I’m upset or stressed; I had no idea she’d be able to detect that I had cancer lurking underneath my skin.”
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