skull surgery

‘I dropped to my knees, a horrible sensation ripping through me. ‘My whole arm just went numb.’ Life changed in a heartbeat.’: Woman diagnosed with Neurofibromatosis II urges ‘surviving means finding hope on the bad days’

“I had never been a ‘sick’ person. I had only gone to the hospital for labor. I didn’t even have a cavity! Now, my kids were crying. My husband was on the phone with 911. I froze. ‘It’s happening again,’ I screamed. My arm moved wildly on its own. Everyone began to scramble.”

‘What did I do wrong to cause this sweet blonde-haired, blue-eyed boy to suffer like this?’ He woke up so smiley that morning. My husband and I were silent. ‘It’s time,’ the team said. The doors shut behind him.’

“Ten minutes went by…then 30 …then 45. I was in a total panic. Instead of the screen showing he was waking up from anesthesia, it said he was still in the O.R. There was a look of concern in his surgeon’s eyes. ‘For some reason, half of his skull expanded faster than the other.'”

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