sleeping

‘I peeked in her bedroom. As I walked closer, I looked at her white feet and knew something was wrong. My brain snapped.’ Mother tragically loses daughter to Sudden Unexplained Death in Childhood

“‘I’m sorry, we have to do this when a child dies in the home. It’s so hard for you,’ the investigator said. They found no cause of death. It is so rare, and the last thing I want to do is cause fear in someone else, but it’s a very real and possible thing that can happen.”

‘She looked like Cinderella, but lives like Sleeping Beauty. We feel guilty for fussing at her, but we had no clue.’: 16-year-old sleeps ‘more than 20 hours a day’ in comas due to severe epilepsy

“People have said she is ‘too pretty’ to be as sick as she is. They simply don’t believe us. This has even happened with doctors because she is dressed nicely and, if she’s well enough for me to prop her up, then I’ll put her makeup on. Her brain misfires more than 80% of her life. She’s been hospitalized hundreds of times, has stopped breathing, her heart has stopped and she’s had to be resuscitated.”

 Share  Tweet