social distancing

‘Unless you have a sick kid, you don’t understand. I wish I only had normal fears. I know any breath could be her last.’: Mom of CHD baby worries during Covid 19, ‘Your fears for your child’s health are NOT bigger than my fears.’

“Her appointment was flat out canceled, and her developmental checks were rescheduled and then canceled. For a normal child, that would be no big deal. For a child who just had major surgery that did not fix everything, those appointments are everything. I wish I could be ignorant like you.”

‘My daughter was trying to break everything. She’s NEVER like that. We’re all feeling the burn.’: Mom sets new ground rules during quarantine, ‘While nothing is perfect, perfection is not what I am going for’

“My daughter had been running away from me for the last 15 minutes. My son was screaming to get my attention. Somebody rang the doorbell. My work call was about to start in 10 minutes and my husband was already on a work call. It has been some version of this every day.”

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