“In ONE sentence, you taught your daughter to ignore someone with a disability; to ignore someone who is different.”
‘Shhhh, just keep walking.’ You taught her NOT to see my son.’: Special needs mom urges ‘ask the questions’
‘At 10 months old, he weighed over 35 pounds. I began keeping food logs. ‘Does this justify the weight gain?’: Mom births baby with obesity disorder, autism
“Immediately after birth, he began growing rapidly. He grew almost 3 inches and 8 pounds in 7 weeks. We were told Joshua’s condition is ‘without a doubt rare and genetic.’ Everywhere we went, people stared. Josh just wants to be everyone’s friend.”
‘No eyebrows and eyelashes,’ she said. I hadn’t noticed his lack of hair. She ran her hand across his sweet face. There was a concern.’: Mom learns of son’s rare CFC syndrome disorder, but keeps ‘pushing forward’
“Our midwife came in and hugged me. ‘How are y’all doing?,’ she asked. It was all too much. What did she mean by ‘abnormalities?’ I stopped her and asked. That’s when the rest of the conversation disappeared from my memory. I would NEVER let this define Nolan.”
‘Your baby doesn’t have eyes.’ What do you mean?! I couldn’t wrap my brain around it.’: Mom discovers baby is blind 16 hours after birth, ‘She is mine and she is so loved’
“I saw her in my dreams with big brown eyes. ‘I think she may be blind.’ Not only was she completely blind, but she also didn’t have eyes! To actually not have eyes seemed impossible. We went home thinking that blindness would be Evely’s only struggle. Boy, were we wrong.”
