“If I could go back in time, I’d tell myself not to read about what my baby might NOT be able to do. She’s inquisitive and full of fun and mischief, and she LOVES broccoli. She is my inspiration.”
‘Her lungs filled with blood, and her heart stopped. We waited 7 years for the results.’: Mom of daughter with Cornelia de Lange Syndrome advocates ‘there CAN be life after diagnosis’
‘She looks different. So what? Who doesn’t?’: Mom to daughter with rare conditions urges ‘being different IS normal’
“We got the most life-altering news. Our baby’s left arm curved in and her right leg was underdeveloped. Her thumb was missing all of its bones. She’s literally the only person in the world like her.”
‘She’ll never walk or talk. Her future is unknown.’: Mother details journey with daughter’s rare chromosomal disorders
“The thing I hate hearing the most is, ‘You just need to wait and see.’ She’s so rare the doctors don’t know the answers to our questions.”
‘My husband looked at me, eyes full of tears. ‘No more planning her death. She’s alive!’: Mom births miracle baby with Trisomy 18
“In a dizzy haze, I followed her to a small room. ‘Our staff has an ethical dilemma treating your child.’ I felt my heart drop. That was the day I took charge.”
‘Her legs look shorter than average.’ I brushed it off and laughed.’: Mom births daughter with dwarfism, ‘She’s the miracle I never knew I needed’
“My doctor came in, very somber. ’We’re concerned she has a growth issue.’ When she was welcomed into the world and laid on my chest, everything clicked and I knew.”
‘My world FROZE. ‘I’ll never get to do the things I want with her.’ Am I even cut out for this?’: New mom births ‘perfect’ baby girl with Down syndrome, ‘She is our angel’
“‘She looks like she has Down syndrome.’ I quickly brushed it off and told him he was overreacting. Then the pediatrician came in.”
‘Your daughter tested positive.’ I asked, ‘What does this mean for her?’ The reply? ‘You can Google it.’ I was HYSTERICAL, but we didn’t give up.’: Woman becomes advocate after daughter born with Trisomy 18
“They told me, ‘She’ll grow out of these issues.’ If they didn’t see the potential in our daughter we weren’t having it. She fought like CRAZY to be here, and we weren’t giving up because of a piece of paper.”
