special needs family

‘The doctor said, ‘If she’s born, she will look scary and be a burden.’ My husband questioned my choice. I decided to walk this path alone.’: Woman births baby with Edward’s Syndrome, ‘Every moment is the greatest gift’

“‘Hello?’ I answered the phone, recognizing the phone number of my OB office. I can’t tell you how the rest of the conversation went because I was absolutely in shock. I heard the words ‘incompatible with life.’ I was encouraged to terminate the pregnancy and was told if born, she would look scary and would be a burden on our family.”

‘I am not sure how you do it.’ More than one child is rushed to the emergency room at once. If I’m being honest, I’m not sure either.’: Special needs mom births 3 children, fosters and adopts 8 more

“After having my own accident that caused a permanent disability, I had to advocate for myself and my kids. 8 of 11 of them are special needs. There are many days I want to pull my hair out, but I never look back and think, ‘Why me?’ I am forever grateful to be their mama.”

‘Flesh was hanging off the roof of his mouth. ‘Your son has no immune system to fight this.’ We were trapped inside the house for months in total isolation.’: Mom to medically complex, autistic sons urges ‘find your village’

“His lesions were so severe he couldn’t eat. Rashes covered his entire body. We had to inject him with Pedialyte every 15 minutes just to keep him from passing out. In the midst of trying to be a normal family of 3, we suffered 3 miscarriages. Here we were, emotionally and physically exhausted, still yearning for hope. Little did we know, after 11 pregnancies, baby B would surprise us with blood in his diaper at just 2 months old. We knew something was terribly wrong.”

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