special needs mom

‘He didn’t pass his mandatory newborn screening.’ I was angry we hadn’t gotten the child we’d planned for. Woman gives birth to son with Waardenburg syndrome, ‘he teaches you more than you ever imagined’

“We were told, ‘Bring him back in a few weeks to re-test.’ When Cooper was diagnosed as deaf, I was pissed. I refused to even say the word for a few weeks. I hated it, as if hating a word have any effect on what we were going through. Now I don’t see it when I look at him. I see my perfect, perfect baby.”

‘The bus was the highlight of her day. She would confidently climb the stairs and hop into her seat.’: Couple buys real school bus for Autistic daughter, ‘The look on her face was worth all the struggles’

“We finally arrived at the location. We all got out and began talking over everything and went to get on the bus to get a thorough look at it. Braylee didn’t miss a beat. She hopped right into the bus, fastened herself right into the harness, and began singing loud and proudly, ‘Wheels on the Bus.’”

‘You could have an abortion. At least save yourself.’ I was pregnant with my first baby, and planning his funeral.’: Woman encouraged to terminate baby with down syndrome, ‘We can’t control what our lives will bring us’

“A week later, I got a phone call from the abortion clinic to schedule an appointment. It turns out my doctor and his wife aborted their child with down syndrome because they thought he or she would become a burden. He thought I should do the same.”

‘She wasn’t getting enough air. She was almost gasping and was quite purple. It was pure torture.’: Woman gives birth to baby girl with Treacher Collins Syndrome, ‘Her disability won’t hold her down’

“I noticed her ear looked small, but I chalked it up to the typical squishiness of a newborn. ‘So what? What is the point of showing me her differences?’ She has underdeveloped ears, cheekbones, and jaw that make her appear a little different than most of us. I just stared at her in awe, with nothing but love and admiration.”

‘What are we supposed to do?’ It must be my fault. I turned to Google for answers and was terrified.’: Mom has surprise Down syndrome baby, ‘Life looks a lot different now than it did 5 years ago’

“She asked us, ‘Did you know he has Down syndrome?’ I was a little shocked. We told her, ‘No, we haven’t noticed.’ She simply said, ‘Well, he does,’ and walked straight out of the room. Her tone and her demeanor were so condescending. I instantly felt fear, anger, and guilt wash over. There were no offers for resources, no books or pamphlets, no direction on what to do next.”

‘Why isn’t anyone congratulating me? Sadly, my daughter’s arrival wasn’t celebrated.’: Woman gives birth to baby with Treacher Collins Syndrome, ‘our normal is different but I wouldn’t change it for anything’

“I was excited and ready to meet our baby girl! I realized something was not right. I said, ‘What is happening?’ Why is my husband so confused and scared? Why can’t my mom look at me? Why did my doctor step out? No one said a word. The silence tore me apart. I finally got a glimpse of Bella and… she looked ‘different.’”

‘The text came at 12 p.m. ‘All schools will close at 2:30 p.m. for a minimum of 2 weeks.’ Autism doesn’t allow for change.’: Mom of autistic child says ‘covid-19 could change everything’

“Routine is something we thrive on in our house. It stays the same every day, down to what my little boy eats, the shape his sandwiches are cut into, and the song we sing at bedtime. Routine is the one thing he could control. With that one text message, everything changed for him.”

‘You tried to distract your boy from ‘bugging’ me on the flight, but then you turned around. Your face lit up!’: Mom to sons with down syndrome shares touching moment with stranger on flight

“I would never hand one of my kids off to a complete stranger. But you weren’t a stranger. Despite never knowing you. Despite your broken English and my zero ability to speak Spanish. For over half an hour, I watched as you sang to him, snuggled him, and loved on him. As I watched your son, my heart soared as I saw my future. And I know as you looked into the almond eyes of my boys, you saw your past.”

‘We attract attention in the checkout line. ‘Isn’t he infected?’ My dark-haired, dark-eyed son sticks out in our otherwise light-haired, blue-eyed family.’: Adoptive mom to boy from China urges for kindness during panic, ‘We’re better together’

“The questions used to range from ‘Where is your son from?’ to ‘Is he adopted?’ or ‘Is he really yours?’ I was always able to easily satisfy people’s curiosity about our beautifully mismatched family. Until now.”

‘The doctor said, ‘I don’t want you to think everything is okay. It’s not. Your baby’s hands are fused together,’ then left the room.’: Mom to son with Apert Syndrome urges for kindness, ‘It’s the best gift you can give’

“‘I’m sorry, but he will definitely have mental issues and live in a home.’ The doctor told me to go home. The second I made it to the car, I lost it. I was crying uncontrollably. I called my husband, but I couldn’t get anything out. ‘Ashley, I need you to PULL OVER. I’m coming to get you.’ I couldn’t, I was so distraught. I just wanted to get home where no one could see me.”

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