special needs mom

‘What are we supposed to do?’ It must be my fault. I turned to Google for answers and was terrified.’: Mom has surprise Down syndrome baby, ‘Life looks a lot different now than it did 5 years ago’

“She asked us, ‘Did you know he has Down syndrome?’ I was a little shocked. We told her, ‘No, we haven’t noticed.’ She simply said, ‘Well, he does,’ and walked straight out of the room. Her tone and her demeanor were so condescending. I instantly felt fear, anger, and guilt wash over. There were no offers for resources, no books or pamphlets, no direction on what to do next.”

‘Why isn’t anyone congratulating me? Sadly, my daughter’s arrival wasn’t celebrated.’: Woman gives birth to baby with Treacher Collins Syndrome, ‘our normal is different but I wouldn’t change it for anything’

“I was excited and ready to meet our baby girl! I realized something was not right. I said, ‘What is happening?’ Why is my husband so confused and scared? Why can’t my mom look at me? Why did my doctor step out? No one said a word. The silence tore me apart. I finally got a glimpse of Bella and… she looked ‘different.’”

‘The text came at 12 p.m. ‘All schools will close at 2:30 p.m. for a minimum of 2 weeks.’ Autism doesn’t allow for change.’: Mom of autistic child says ‘covid-19 could change everything’

“Routine is something we thrive on in our house. It stays the same every day, down to what my little boy eats, the shape his sandwiches are cut into, and the song we sing at bedtime. Routine is the one thing he could control. With that one text message, everything changed for him.”

‘You tried to distract your boy from ‘bugging’ me on the flight, but then you turned around. Your face lit up!’: Mom to sons with down syndrome shares touching moment with stranger on flight

“I would never hand one of my kids off to a complete stranger. But you weren’t a stranger. Despite never knowing you. Despite your broken English and my zero ability to speak Spanish. For over half an hour, I watched as you sang to him, snuggled him, and loved on him. As I watched your son, my heart soared as I saw my future. And I know as you looked into the almond eyes of my boys, you saw your past.”

‘The doctor said, ‘I don’t want you to think everything is okay. It’s not. Your baby’s hands are fused together,’ then left the room.’: Mom to son with Apert Syndrome urges for kindness, ‘It’s the best gift you can give’

“‘I’m sorry, but he will definitely have mental issues and live in a home.’ The doctor told me to go home. The second I made it to the car, I lost it. I was crying uncontrollably. I called my husband, but I couldn’t get anything out. ‘Ashley, I need you to PULL OVER. I’m coming to get you.’ I couldn’t, I was so distraught. I just wanted to get home where no one could see me.”

‘The nurse handed my daughter back. I instantly noticed her teeny tiny ears. ‘Do you think she has IT?’ I looked at my husband in fear.’: Mom of 3 births baby with down syndrome, ‘She is the most amazing human being I’ve ever met’

“I thought my husband would tell me to stop being so dramatic and ridiculous. After all, I was only 32 and I had a 0.0014% chance. Instead, he looked back at me, glossy-eyed, and said, ‘Maybe.’ My heart sank. The nurse unswaddled my baby and stared as my eyes filled with tears. I felt like my life, as I knew it, was over.”

‘His face lit up. ‘There’s my friend, Max!’ You didn’t hear your son say that. But I did. I looked at my son. He was still crying.’: Mom to special needs son thanks woman in parking lot ‘for answering my prayers’

“As you both passed the side of my car, your son, still trying to catch up with your pace, made contact with mine. My son threw his cup and flung his head back in frustration. He couldn’t tell me what he needed; he is non-verbal. He didn’t know someone had noticed him, someone called him his friend.”

‘I was 19, pregnant. ‘Your baby is missing arms and legs. I’m only seeing 2 toes and a partial foot.’ I thought it was some cruel joke.’: Teen mom births baby with phocomelia, ‘He beat all the odds’

“Evan was whisked away immediately after birth. My stepmother grabbed my mother and left the room. Both were visibly shaken. I overheard them in the hall: ‘You’ve got to get it together. They need us now more than ever!’ The doctor entered. ‘Ms. Sanchez, there is a problem. Your son’s spine is severely twisted and growing out of the side of his back. If this continues, it will pull his ribcage into his heart and kill him.’ I was devastated.”

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