special needs momma

‘Your son is deaf.’ We were praying it was a huge mistake. They wheeled him out. I lost it.’: Mom shocked by newborn’s severe hearing loss, ‘we had no family history’

“Beckett hadn’t heard for the first 13 months of his life and BAM. He was suddenly hearing. I cried on the way home, if I’m being honest. I received nasty, angry messages. I was ‘playing God’ by wanting to give him the gift of sound. Wanting our son to be able to hear us tell him ‘I love you’ was NOT a selfish thing.”

‘Is this a nightmare?’ We said goodbye, not knowing if she’d recognize us again. Our sweet, perfect girl was dying.’: Mom ‘crushed’ by Childhood Alzheimer’s diagnosis, ‘We spoil her every day’

“5 hours after she was born, they needed life-flighted her to another hospital. ‘Your baby is breathing a hundred breaths per minute.’ I was numb. She stayed on oxygen for two months, but there was still no diagnosis. Her file read, ‘Unknown respiratory issues at birth.’ I felt hopeless for answers.”

‘Don’t take her home with you,’ I was told. ‘If you have other kids, she’ll be a detriment to them.’ How wrong they were.’: Mom keeps baby, now world’s first ‘working model’ with Down Syndrome

“I’d never taken Madeline to a fashion show before because she was always sick. When her health increased, we walked in as I thought to myself, ‘What have I done?!’ I knew full well my daughter would want to be on that catwalk, too. Sure enough, after the show, she turned to me and said, ‘Mom. Me. Model.’ I’m the type of mom to do whatever I can to make things happen. Little did I know what this all would turn into.”

‘Can I still use the tickets even though my baby passed?’ Their response: ‘No, your guest must be present.’ My heart broke into a million pieces.’: Mom loses baby girl to pneumonia, ‘She isn’t in pain, she is free’

“The day she died was the day we got the email that we had won the tickets. I asked if we could still use it for my girls, even though one was now my angel baby. It felt like the perfect thing to honor and remember her. A simple no would have been okay with me, but their words felt like a stab to the heart. The bear lost its meaning to me.”

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