“As time passed, I saw major changes in my once happy, carefree child. He was withdrawn and started to not like playing with his siblings or classmates. The doctor told me it was ‘just a side effect.’ My mom gut told me something wasn’t right.”
‘Your son has the worst epilepsy I’ve ever seen.’ It’s insane to have doctors ask how to treat your child.’: Mom shares son’s journey with Epilepsy through misdiagnoses, mistreatment to 3 years seizure free
‘I really empathize with you for having a child with special needs.’ A line so innocent, but it cuts like a knife.’: Mom of son with autism urges ‘please do not pity us’
“At 2 years and 9 months, he was diagnosed with Autism. Did it change who he was? Not for a second.”
‘I’m so sorry mommy wasn’t there to protect you.’ Forever didn’t last as long as we thought it would.’: Adoptive mom remembers medically-complex daughter after her passing
“‘She’ll probably be in the hospital until her 2nd birthday.’ I enjoyed every second I got to be her mom. Even if I knew how this was going to end, I would do it all over again.”
Disney’s Latest Film ‘Turning Red’ May Feature A Character With Type 1 Diabetes, And Parents Are Very Excited About It
“It means more to my daughter to see a character like this than she can explain.”
‘Her lungs filled with blood, and her heart stopped. We waited 7 years for the results.’: Mom of daughter with Cornelia de Lange Syndrome advocates ‘there CAN be life after diagnosis’
“If I could go back in time, I’d tell myself not to read about what my baby might NOT be able to do. She’s inquisitive and full of fun and mischief, and she LOVES broccoli. She is my inspiration.”
‘Why Andie have seizures?’ Seeing her so worried, I wanted to answer all her questions.’: Mom of daughter with Dravet Syndrome writes children’s book about seizures, ‘I was inspired by my girls’
“‘Andie is acting strange.’ Our baby’s left arm and leg were rhythmically jerking. After an hour, she’d not stopped seizing. ‘Call 911!’ In a matter of minutes, our future shattered.”
‘We can’t see any arms.’ I was chasing shadows and clinging to hope there was a mistake.’: Mom gives birth to son with TAR Syndrome, ‘No arms? No problem!’
“Why does EVERYTHING have sleeves? The feeling of being inadequate hit me like a freight train. I didn’t sleep. I didn’t eat. ‘How are we supposed to raise a child with no arms?’”
‘Mom, I know it’s hard. I love you two more than you think.’ I felt like a failure.’: Autism mom shares ode to daughter, ‘I wonder if she knows how incredibly special she is’
“She let me sleep when she got up and wanted breakfast. She shut my door, then turned on his show and got him a drink. I wonder if she knows the guilt I felt.”
‘Somewhere along the way we became angry. We put up walls, we stopped holding hands.’: Special needs parent urges ‘never stop fighting for each other’
“We poured so much of ourselves into our children, we forgot marriage needs attention and work, too. We advocated for our children, but we forgot to advocate for each other.”
‘Every single day is a back and forth of finding the joy and grieving the life you thought your child would have.’: Woman pens letter for ‘the struggling autism mama’
“You will fight, and you will fail, but you will learn a love that can only be felt and not explained. You will find a strength and grit you never knew was in you.”
