“Late at night, when the rest of the family has gone to bed, he sits in the darkness of the living room. ‘Did I lose my patience too much? Did I apologize too much for my complicated boy?’ Deep inside, he is full of doubt and worry. This tender father is fighting a battle many will never understand.”
‘He gave up visions of Little League for IEP meetings and speech therapy. He avoids the stares, holding his teenager’s hand, and his entire heart.’: Woman pens appreciation letter to Autism Dads
‘Breathe. Mommy is here. You are safe.’ I hate that he has anxiety. I wish I could take it away from him.’: Special needs mom talks anxiety
“Sometimes it comes from nowhere. He will be perfectly happy and then I look in the car mirror and I see the tears begin to form. Every time we go somewhere different, he is riddled with anxiety.”
‘I gasped in the CVS parking lot. The file read, ‘Child Reserved.’ My hands shook as I waited for my husband. I tried not to peek. Then, we saw the face that took our breath away.’: Couple adopt special needs child, ‘She has forever changed our hearts!’
“I called our agency and said, ‘YES! Tell us all you can.’ We were told she might not ever walk. The lower portion of her body had not properly formed in the womb. She was missing her sacrum and bottom 3 vertebrae. Her little intestines were blocked. ‘Can you be in India in four days?’ Something in us knew this precious girl was ours.”
‘How do you send a child who doesn’t understand personal space, let alone social cues, back to school?’: Special needs mom says ‘I trust we will all make the best decision for our family’
“What do you do when you have a child who explores the world around him by touching and feeling everything he sees? Last night, I broke down. All the thoughts and emotions came pouring out of me on my bedroom floor. As a parent of a child with a disability, NOTHING can prepare us to make the type of decisions we are all abruptly facing.”
‘We’re so lucky your dad still has his job.’ I don’t know how we’ll do it another day, another week, another year.’: Mom of special needs son says ‘being his caregiver is a whole life job’
“Most children don’t depend on their parents for everything their entire lives. We always worry about illness. He’s nonverbal, cannot walk, has a feeding tube, and recently has been diagnosed with a seizure disorder. But then, I look at Christopher and smile.”
10 Things Special Needs Parents Wish They Had
“We always expect our kids with special needs to learn how to live in a world that wasn’t made for them, but we never ask the people around them to learn more about how to live in theirs.”
‘Because of autism, my daughter doesn’t know her beautiful brown skin is a threat in this world.’: Mom to daughter with autism says ‘I must worry about protecting her’
“Because of autism, I don’t have to explain the growing list of hashtags. Because of autism, I must worry about protecting my nonverbal child from authorities who don’t understand she will not comprehend or obey verbal orders.”
‘We’ve known for over a year our sweet toddler struggles from the effects of alcohol during pregnancy. He’s one of the ‘lucky’ ones.’: Mom realizes ‘I am a special needs mom and it’s hard’
“I didn’t want to be that mom. Then, Covid hit and it closed our developmental daycare my 2-year-old attends. And things got real.”
‘Riley is now 6 years old. He still does not speak. I always thought words were what mattered.’: Mom to son with autism says ‘I was lucky to be in his world, I just didn’t know it yet’
“Waiting for Riley to ‘tell’ me he loves me. Waiting for him to say mommy. Waiting for him to speak. How I wished I could get a moment in his head. When in reality what I really needed to do is take a step back and see was he showed me love in ways that don’t need words.”
‘What happens to my girl when society realizes it’s not ‘cute’ anymore? How do I make people see the beauty I see?’: Mom to daughter with autism urges us to challenge our idea of beauty
“When she was 2, she didn’t talk. She said one word, ‘Hi,’ over and over. I was worried, but most agreed it was so cute. At 4, she stuffed food in her mouth messily. Gosh, it was cute. At 6, she was diagnosed. Everyone agreed she was still cute, but followed with smiles of pity. Now, she’s 11. She picks her nose, sits with her legs wide open. She has body odor, speech delays, and drools. What happens to my girl when society decides it’s not ‘cute’ anymore?”
