special needs parents

‘My daughter took her final breath. I felt a sudden surge of energy rush into my body. I carried her downstairs to the gurney.’: Grieving father recalls ‘hardest thing’ he’s ever done, ‘Sophia needed her Daddy one last time’

“When the funeral coordinator arrived, I gently picked Sophia up one last time. I carried her down the stairs to the gurney waiting for her. I made sure she was carefully secure as she was loaded into the van to the funeral home. I was lucky to be her daddy. I still have not grieved from watching my beautiful sweet girl die. I write her name in the shower on the glass with a big heart every day. It’s my way of remembering her.”

‘Your baby is breathing 100 times per minute and still not getting oxygen.’ I felt so angry. I wanted answers.’: Mom ‘crushed’ by Childhood Alzheimer’s diagnosis, ‘we spoil her every day’

“I was at work, six months pregnant, when I saw the doctor’s office was calling. I naively answered. I shouldn’t have. ‘The older she gets, the more her body and mind will fade away.’ I didn’t want to call my husband. I wanted to crawl in bed and never come out. We spend each day wondering, ‘Will today be her last? Will she recognize me tomorrow?’ Our sweet, perfect, little girl was dying.”

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