“Barring the dangerous, we would not say a word. Nothing. No emotion. Silence. Instead of avoiding a festival or a park because, what if he has a meltdown in public, we say ‘Yes.'”
‘Get down from there.’ ‘Please stop. That is dangerous.’ Aggressive meltdowns led to restraining him to prevent self-harm or harm to others. Finally, we decided to medicate our son.’
‘It’s okay. Get in your car and scream. It’s not going to make everything go away, but you deserve the release. Are the tears coming now? Good, don’t stop them.’
“This feels like the weight of the world because it’s about your entire world: your precious child. Every prenatal screen passed with flying colors. They tell you your child is healthy and whole, and now, they say that very same child has special needs. Here’s how you reclaim your power.”
‘Our son screamed like he was being tortured at school. Teachers, parents, and students stood, jaws agape, staring in complete shock, assuming the worst. We felt completely isolated.’
“There were red flags when he was only 18 months old. Many doctors, because of his age, wouldn’t even see us. When meltdowns occur, we feel embarrassed and panicked. Everyone either tries to help in ways that usually make things worse, or just stare without a clue how to help.”
‘Her oxygen levels dropped. She had blisters and dark swirls all over her body. Ever seen a movie where someone gets devastating news and collapses down a wall? That was me.’
“After about 8 hours of not being able to get our 5-day old daughter to eat, we took her to the emergency room. ‘She’s fine,’ they told me again. I kissed my 2-year-old. ‘I’ll be back as soon as I can. I’m just going to go make sure your sister is okay.’”
‘I was told it was the ‘Cadillac of disabilities.’ His pediatrician even said, ‘Out of all the heartbreaking disabilities, his is also heartwarming.’ Down syndrome isn’t easy. We ARE special.’
“I’m here to call us out on all of our mild-mannered modesty. I’ve realized we ARE special, and we deserve that title. No, not everyone can do it. You are different. Your child is different. I am tired of wearing the martyr mask with an ‘aw shucks’ and a ‘not little ol me.’”
‘No, not again! I can’t handle another child like this!’ I was angry at people who asked, ‘Are you gonna try again for a ‘normal’ child? I sat in the bathroom, crying.’
‘I was in survivor mode. I wouldn’t let myself feel. I couldn’t be weak; I had to keep going. People asked, ‘When will they grow out of it?’ I remember getting to a point where I thought, ‘This is going to kill me. I need to accept it.'”
‘Oh my Gosh, she’s a baby. ‘I’m saying yes,’ I typed to him in Afghanistan. ‘Say yes,’ he responded simultaneously. ‘We’ll take her!’ I nearly shouted into the phone.’
“‘Dad has to move to Colorado,’ I told our sons. ‘He doesn’t have a choice’ ‘We’re not leaving her, right?,’ Aidan interrupted, his tone laced with terror. ‘We can’t just leave her!’ His voice was sandpaper rough, speaking the words I couldn’t. ‘We…we might have to make a tough decision.’ ‘I know,’ I whispered.”
‘I wanted to make it a night to remember.’ Football player goes all out with Promposal to make girl with Down syndrome ‘feel like a princess’ at Prom
“David heard that Destinee wanted nothing more than to attend Prom, but didn’t think she’d ever have a chance. He decided to take matters into his own hands and did something beautiful.”
‘I was talking to and rubbing my belly. ‘I’m thankful for you. I love you no matter what. You are my child, and I will treat you as I would treat any child, even if I have to do this by myself.’
“Angelica was admitted into the hospital for emergency surgery. As I was leaving all of my emotions hit me. I felt so overwhelmed, my newborn baby was in the hospital, and now my wife. I felt helpless.”
‘She is literally an angel from heaven. But We. Were. Terrified. Instead of leaving the doctor smiling, we were scared. ‘There’s something wrong with the baby!,’ we sobbed.
“I was a first-grade teacher. My students didn’t know anything was wrong with the baby. It was difficult. They didn’t understand why I was out so often, why I wasn’t myself. I felt isolated. Alone. Misunderstood.”
