“My symptoms weren’t just asthma. It was something more. ‘You’re too young to be sick. You just have anxiety.’ I felt stuck at a standstill with my health. I am determined to get answers.”
‘Please don’t die,’ I said to myself. The doctors were PUZZLED. I felt trapped in my body, scared of what each day would bring.’: Chronic illness warrior fights for answers, ‘I will overcome’
‘He failed both of his hearing tests. ‘It’s just fluid.’ I could tell something wasn’t right. All of my hopes for him were RUINED.’: Mom advocates for son with hearing loss, ‘Trust your gut’
“I had no clue about hearing loss and had never even met a deaf person. I left that appointment in shambles, feeling so bad for my baby. ‘Is this my fault? Can it be reversed?’ I wanted Mason to experience waves crashing on the shore, crickets chirping at night, the giggles of his sisters. I wanted him to HEAR.”
‘There’s no cure.’ He had cysts on his brain. We were at a dead end. I was beyond devastated, but I had to fight.’: Mom advocates for son born with hearing loss, CMV, ‘He’s made me stronger’
“He suddenly had microcephaly, and none of us understood why. I was terrified. He was so tiny and fragile. All of this was because I contracted a virus while pregnant. I felt so guilty.”
‘The doctor gently told us, ‘His case is not mild. At the very least, he’s on the severe end.’ Everyone focuses on what he CAN’T do, but we focus on what he CAN do.’: Mom recounts son’s diagnosis journey with autism, ‘You’ll move mountains’
“The signs were all there. Everything. I knew it was time. How did I not know sooner? I’m his mom, shouldn’t I just automatically know these things? We are NOT going to give up on you.”
‘You were born for our entertainment.’ An avalanche of mean comments poured in. It was crushing.’: Woman with dwarfism ‘determined’ to spread awareness
“With a smile, my dad said, ‘You’re going to be tiny all your life.’ It didn’t usually bother me. I found acceptance and kindness at nearly every turn. And then I went viral.”
‘That’s so sad.’ But we are NOT sad. I just wanted to squeeze him so hard and run right out of there.’: Autism mom says ‘His diagnosis is actually his superpower’
“My mind was racing with what to do next. I don’t know why it was so hard for me to make the appointment. I carried him in with his favorite blanket in hopes it will make everything better. He was actually diagnosed with a superpower.”
‘How can something this terrible exist?’ He had a fever for 105 days. This is our new reality.’: After son’s Sanfilippo Syndrome diagnosis, family raises money for cure, ‘Time is precious’
“Carter went from speaking two-word sentences to having his vocabulary drop to less than ten words. ‘He’s 3 and not potty trained?’ I laughed, ‘Oh, you know boys.’ Our sweet, joyful little boy did a complete 180 before our very eyes.”
‘It took him nearly an hour and a half to finish a bottle. Milk would come out from his nose, his ears. EVERYWHERE.’: Boy’s cleft lip and palate ‘gave him a chance to know why he’s special from an early age’
“I was alone when they told me. I do remember carrying my still squirming baby boy up the stairs to his room and collapsing on the ground next to his dresser, unable to move, unable to even cry. A strange thing happened during this time. I grew up. I got tough. To the rest of the world, it was a defect, but to us, it was precious.”
‘5 months after my daughter was diagnosed with leukemia, I felt a soft lump in one breast. ‘It’s not cancer,’ the doctor assured me. I believed her.’: Mom diagnosed with breast cancer 5 months after daughter’s leukemia
“All throughout her treatment, I asked, ‘Why her and not me?’ Well, someone was listening. It wasn’t until she finished treatment, I took some time for myself. I felt a soft lump in my breast. I knew it was cancer. ‘Whatever happens, please stay positive.’ My daughter with leukemia was ready to take the lead and help me.”
‘Put the device away!,’ a lady was yelling at me. ‘I’m deaf, this is a closed caption device for the movie.’: Woman diagnosed with ‘profound hearing loss,’ credits daughter for giving her ‘strength’
“Hands pointed at me as they whispered to each other, ‘She is deaf.’ I feared my daughter would not understand me. I feared I would not hear my daughter. One day, when she was in 2nd grade, a boy made her upset by making fun of my accent. She said, ‘My mom is deaf!’ This was just the beginning for her to witness my challenges. I sobbed as soon as we got home. My daughter comforted me, cried with me.”
