spina bifida

‘This child will be a burden to you.’ Her chocolate eyes shot through my screen. ‘Oh, crap.’ A feeling washed over. ‘There you are, my child.’: Woman adopts girl with spina bifida, epilepsy

“A feeling washed over me. The exact same wave that washed over when they placed my biological children on my chest in the delivery room. ‘There you are, my child.’ Stroking my cheek, I felt her 28 pounds snuggle into mine. ‘Mommy, I’m so glad you found me in Armenia. I missed you even when I didn’t know you.’ She fed my soul, and she doesn’t even know it.”

‘My mom noticed a hole above my tailbone she could fit her pinky into. The doctors told her, ‘As long as it’s covered with skin, it’s nothing to worry about.’: Woman with spina bifida and fibromyalgia suffers from ‘back attacks’ and ‘wild symptoms’

“During birth, the umbilical cord was wrapped around my neck. In order to save my life, the doctor had to act fast. My mom’s tailbone was broken. Then like any other mom, she diligently looked over my body and immediately noticed a hole above my own tailbone. The doctors told her, ‘It’s nothing to worry about.’ But at 7 days old, I had a temperature of 104 degrees. As I grew, so did the tumor. It tightly wrapped around my bladder and kidneys, slowly killing me.”

‘Something is wrong with her brain…’ I was wailing, screaming. ‘What does that mean?!’: Mom births rainbow baby with Spina Bifida after 3 pregnancy losses, ‘She is a twice-born miracle!’

“24 weeks pregnant, we got devastating results, yet again. But this time was different. We found out our miracle child had a rare diagnosis. We were given the option of terminating her, just after I finished telling the doctor how beautiful she was. After 5 long, painful, and agonizing years, I cried. Nothing was going to stop us from having the family we dreamt of.”

‘Could you be pregnant?’ I mean yeah, I guess I could be, but I’m pretty sure I’m not. I decided to put ‘Yes’ for the answer.’: Woman gets surprise pregnancy news at dentist

“‘I need you to go take this test to make sure. If you are pregnant, we can’t do the x-rays.’ I thought this was crazy, went into the bathroom, and pee’d on the stick. She grabbed it, looked at me, and called for another lady to come look. The other lady looked at me. ‘Yeah, we aren’t doing the appointment.’ I walked out, called my boyfriend and told him they wouldn’t finish my appointment. He was confused.”

‘There’s an issue with her hand.’ I was scared. It was inverted backwards, and she only had 3 fingers.’: Mom ‘shocked’ after daughter born with limb difference, ‘I was determined to protect her every way I could’

“The moment I gave birth to her, I noticed the doctor and nurses exchanged glances. They wrapped her up before handing her to me. ‘We want to get her cleaned up first.’ I didn’t understand. I quickly opened her up and checked. I was shocked. I told my husband, ‘God created her like that.’ The doctors were accusing me I ‘must’ve taken drugs’ while I was pregnant. ‘Her deformity is the reaction the drugs had on the baby,’ they said. Babies ‘like these’ come with ‘a lot of baggage.’ She is different, not less.”

‘Gianna would love to talk to you.’ I instantly regretted my decision. ‘Do I really want her at my house?’ We set a date.’: Mothers form unlikely bond through special needs daughters, ‘Everyone is struggling. Some of us just hide it better’

“She thought we should meet. Would it be awkward? Texting a stranger? I knew what I needed to do first. Look her up on Facebook. I immediately found her page and was instantly intimidated by her photo. Her profile picture was of her on their wedding day. She was beautiful, thin, gorgeous. There were no photos of her daughter’s face. Everything was vague. Did she think she was Blue Ivy? What’s the deal with that? I am a chronic over-sharer. Surely we wouldn’t have anything in common. Oh how wrong I was.”

‘You’ll never have to bury our kid’s father again. You can get through this.’ Little did I know.’: Woman loses 2 lovers to tragic accidents, says ‘becoming a mom’ is the best thing she’s ever done to carry on their legacy

“James called to tell me he would be a while longer, it was already getting dark. He said, ‘I love you kitty, I’ll be home late.’ I can see myself standing in the kitchen on the phone with him, I can feel the emotion like it’s happening now. When the phone rang around 11 p.m., I knew he was dead. It was happening all over again.”

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