spina bifida

‘There’s an issue with her hand.’ I was scared. It was inverted backwards, and she only had 3 fingers.’: Mom ‘shocked’ after daughter born with limb difference, ‘I was determined to protect her every way I could’

“The moment I gave birth to her, I noticed the doctor and nurses exchanged glances. They wrapped her up before handing her to me. ‘We want to get her cleaned up first.’ I didn’t understand. I quickly opened her up and checked. I was shocked. I told my husband, ‘God created her like that.’ The doctors were accusing me I ‘must’ve taken drugs’ while I was pregnant. ‘Her deformity is the reaction the drugs had on the baby,’ they said. Babies ‘like these’ come with ‘a lot of baggage.’ She is different, not less.”

‘Gianna would love to talk to you.’ I instantly regretted my decision. ‘Do I really want her at my house?’ We set a date.’: Mothers form unlikely bond through special needs daughters, ‘Everyone is struggling. Some of us just hide it better’

“She thought we should meet. Would it be awkward? Texting a stranger? I knew what I needed to do first. Look her up on Facebook. I immediately found her page and was instantly intimidated by her photo. Her profile picture was of her on their wedding day. She was beautiful, thin, gorgeous. There were no photos of her daughter’s face. Everything was vague. Did she think she was Blue Ivy? What’s the deal with that? I am a chronic over-sharer. Surely we wouldn’t have anything in common. Oh how wrong I was.”

‘You’ll never have to bury our kid’s father again. You can get through this.’ Little did I know.’: Woman loses 2 lovers to tragic accidents, says ‘becoming a mom’ is the best thing she’s ever done to carry on their legacy

“James called to tell me he would be a while longer, it was already getting dark. He said, ‘I love you kitty, I’ll be home late.’ I can see myself standing in the kitchen on the phone with him, I can feel the emotion like it’s happening now. When the phone rang around 11 p.m., I knew he was dead. It was happening all over again.”

‘We’ll operate to decrease her brain damage. Nevermind. BMI is too high.’ I was too fat to save my baby.’: Mom births baby with ‘severe’ Spina Bifida, says she is ‘not disabled, just does things in her own way’

“One morning, a woman came in swiftly wearing a leopard blouse and clicking her heels. She walked right over to me. ‘Sorry for the bad news,’ she said and walked away. What bad news?! I wasn’t informed of any bad news! I broke out into tears as she exited. During the gender reveal, I was hiding this secret while watching my mom cut into our cake. I was giving them a broken baby.”

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