“Before me, on a poorly lit screen, was a prognosis I never expected to read. Every website shattered my heart as I scanned the same words over and over, desperately hoping to read a different outcome.”
‘I finally turned to my mother, unsure of wanting to know the truth, and hesitantly asked, ‘Mom, am I going to die?’
‘WHAT ARE YOU NOT TELLING ME?!’ We held her in our arms as she drowned in her own lungs. All I could do was love her.’: Mom mourns loss of daughter to Spinal Muscular Atrophy
“One phone call doubled her life. As I stood there with my husband, holding our 21-month-old baby girl, I felt helpless. I helped bring her into this world, and if she had to die before me, I wanted to be there as she left it. The moment her heart stopped beating, I wasn’t sure mine would keep going. It did. I questioned why. I’d just spent 2 years of my life being a full-time mom and caregiver, and in a moment, everything changed.”
‘I didn’t want my heart broken again’: Wheelchair user finds her ‘true, unconditional love’ after trying to ‘self-sabotage’ the relationship
“He never once made me feel insecure about my disability and never once asked me what my disability meant for my future.”
