“Before me, on a poorly lit screen, was a prognosis I never expected to read. Every website shattered my heart as I scanned the same words over and over, desperately hoping to read a different outcome.”
‘I finally turned to my mother, unsure of wanting to know the truth, and hesitantly asked, ‘Mom, am I going to die?’
‘She might not see her first birthday.’ Her right arm looked like a little chicken wing. I knew it was urgent.’: Couple loses daughter to Spinal Muscular Atrophy, ‘Love can heal any wound’
“She couldn’t hold her head up and struggled to breathe. Every single doctor said, ‘There’s nothing else that can be done.’ I felt so helpless. But there was nowhere else I would’ve rather been. As we heard her breathing rattle with fluid, I cried out to God to end her suffering.”
‘I didn’t want my heart broken again’: Wheelchair user finds her ‘true, unconditional love’ after trying to ‘self-sabotage’ the relationship
“He never once made me feel insecure about my disability and never once asked me what my disability meant for my future.”
