“When they pick my performance to pieces and criticize my every move, I then have to deal with being humiliated and adding another layer of my ‘not being good enough’ complex to the myriad of problems I already have to face on a daily basis.”
‘If things don’t improve, we will let you go. They get a choice whether to believe me. My illness isn’t visible.’: Woman describes being ‘dehumanized’ after being fired for being disabled
‘I’m often mistaken for being lazy or spoiled. The dirty looks I get would shock you. I may look like a typical 23-year-old, but I’m not.’: Woman with multiple ‘invisible’ chronic illnesses refuses to let struggles ‘overcome her joy’
“My determination isn’t disabled, my fire isn’t disabled, but my body is. For a long time, this was hard to admit. I do my best to show up every day, but it’s not always enough. I can practically smell the resentment from my coworkers. My boss stopped believing me and asked for a ‘doctor’s note.’ Instead, I ended up hospitalized. ‘Is this good enough?’ I snarkily asked. I know I should keep my mouth shut, but I really can’t help myself. The struggle is REAL.”
‘How did I end up in a wheelchair from a bite? By my early 20’s, I was completely bedridden.’: Woman details ‘loss of faith’ while searching for Lyme disease diagnosis
“I didn’t leave my bedroom for 7 months or my house for 11 months. Once every two weeks I was carried from the bed to the bath to be washed and changed into Pjs, then back to bed. This was my routine for 7 months.”
‘After a yoga session, my spine slipped forward. I couldn’t move. I couldn’t roll over. I was a vegetable.’: Woman with Spondylolisthesis, chronic illness claims ‘pain is inevitable,’ but ‘suffering is optional’
“I remember laying in bed, feeling trapped inside myself. I had no idea at the time this injury would turn my world upside down and become the barometer for all the decisions I made for the rest of my life. Working, having a family, being active, or doing all the things a normal 30-something-year-old should do are no longer an option.”
‘Minutes after being born the doctors noticed my skin peeling from just being wrapped in the typical blanket they use with newborns’. Woman describes the pain of living with Recessive Dystrophic Epidermolysis Bullosa
“There’s often the misconception my illness is not a big deal and it’s ‘just a skin condition.’ If my illness was as minor as people tend to believe I wouldn’t have lost the ability to walk over the years, or my hands wouldn’t be webbing from years of scarring and friction.”
‘Help!’ I banged on the wall. My parents were downstairs. I reached for my nebulizer, but quickly realized something was wrong. This is when I remember feeling very calm and a sense of peace.’: Young woman learns ‘lesson’ after near-death experience from whooping cough
“Before bed, my dad asked if I needed to go the the hospital. As a stubborn 19 year old, I somehow talked my way out of it. I told him I was ‘fine’. The next thing I remember, my parents were rushing downstairs. They immediately tried to put my nebulizer mask on, but for some reason I was pushing it away. I woke up in an ambulance. I still feel guilty about that night.”
‘I got caught in a snowstorm. My car tipped off a mountain road and landed in a 15-foot ravine. I grabbed my dog, zipped her in my jacket, and scrambled up a hill.’ Car accident triggers woman’s ‘tonic clonic’ seizures
“It took them two days to find my white car in all the fresh snow. Surprisingly, nothing was broken. Once thing’s seemed to be falling into place, that’s when my first seizure happened. I went face down onto the hardwood floor.”
‘I did a quick 20 minutes on the elliptical at the student gym. When I woke up in the morning, I couldn’t lift my head.’ Woman describes freak accident after typical gym workout
“I was only 18. I had my whole life ahead of me. I was a freshman at my dream college, making friends, and discovering myself. I knew my life and body would never be the same. I could no longer walk and fell to the ground. The pain was unbearable. The workout was nothing I hadn’t done a hundred times before.”
‘I don’t think mom is breathing, I fell asleep and I don’t think she’s breathing.’ I called 911. My dad and rushed to my childhood home. But I knew. Then I heard the medics say, ‘That’s it, call it.’
“I made her coffee and we sat together like we always did in the morning and chatted. Later I took her home, gave her medicine, and kissed her goodbye. I tried calling the next day, but was told she was ‘resting.’ My heart had already broken.”
‘I was sent home alone in an Uber in the middle of the night. ‘Just tell me your name!’ I couldn’t remember for the life of me what it was. All I could do was cry. That’s the only thing I remembered how to do.’
“I’ll never forget how I felt. I seemed hungover, except that wasn’t the case. My doctor told me, ‘Have you ever thought that it might be all in your head?’ Everything began to take a turn. I was once the quick-witted friend who always had a joke. Now I was the girl in the back of the classroom, crying because I didn’t know how to be a person anymore.”
