“A dark thought crossed my mind. ‘Maybe David will die, and we’ll be able to forget this whole thing ever happened.’ As soon as that thought came, it was quickly followed by another. ‘God, please, please don’t let my baby die!’”
‘Expect problems.’ I had heard those words before. ‘What kind of problems?,’ I asked, my voice trembling.’: Mom gives birth to son with Cornelia de Lange syndrome, ‘He’s shown me how to love’
‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis
“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”
