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‘You’re imagining the sensation.’ My right hip snagged. My leg buckled beneath me. Pain shot into my thigh like electricity.’: Woman finally diagnosed with Ehlers-Danlos Syndrome, ‘They didn’t believe my pain’

“My doctor asked, ‘Are you having substance abuse issues?’ I was taken aback. I told her no. I was very hesitant to take any medications, much less for pain. ‘Leave a urine sample on the way out.’ She ran a full drug screen without telling me. It came back clean, but it didn’t matter. She didn’t believe me. She didn’t believe my pain. I was heartbroken.”

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