SUDEP

‘What happened, buddy? What happened?’ I laid down next to him, held his hand. An eerie calm came over me.’: Father pleads ‘hug your kids, don’t work too late’ after regretting ‘missing out on things’ with twin son who suddenly died in his sleep

“The evening before was normal. He was healthy and engaged. We had kids over for dinner. We all jumped on the giant trampoline. He got bossy with the other kids and started telling everyone they were playing the game wrong. I pulled him aside. I was stern with him. Too stern in hindsight. And I made him cry. It’s one of the last interactions we had, and I’ve beaten myself up for it. I can still see the tears rolling down his face. ‘But you’re not listening to me. No one listens to me.’”

‘He was sleeping late. I became suspicious, pulled the blanket back. My son had been dead for at least 8 hours.’: Mom begs parents to spend time with children now after 8-year-old son dies in his sleep, ‘we wish we had more time’

“I started to call 911, but hung up. There was a more important call I needed to make. My husband at work. ‘Wiley’s dead.’ I couldn’t sugar coat this and didn’t have time to explain. I had approximately 4 minutes to explain to his twin brother that his best friend had died before 15 people swarmed our home. I asked him to pick a location where he would feel safe. Then, sirens.”

‘She looked like Cinderella, but lives like Sleeping Beauty. We feel guilty for fussing at her, but we had no clue.’: 16-year-old sleeps ‘more than 20 hours a day’ in comas due to severe epilepsy

“People have said she is ‘too pretty’ to be as sick as she is. They simply don’t believe us. This has even happened with doctors because she is dressed nicely and, if she’s well enough for me to prop her up, then I’ll put her makeup on. Her brain misfires more than 80% of her life. She’s been hospitalized hundreds of times, has stopped breathing, her heart has stopped and she’s had to be resuscitated.”

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