“How can I watch him learn how to feed himself, knowing all too soon he won’t be able to move his arms? I tried to imagine what life was going to look like with this diagnosis. ‘I just can’t do this.’”
‘I’m lying on the ground crying. ‘I can’t bear this.’ His life will be over before it really begins.’: Mom advocates for son’s terminal illness, Duchenne’s Muscular Dystrophy, ‘Strength is more than muscle’
‘He never complained; he just chugged along. It wasn’t easy. It almost felt like I was running.’: Wheelchair user with terminal illness thanks friend for his act of kindness
“There are many things I struggle with in regards to living with a terminal illness. Even if I did just a 5k one day, I could knock it off my list and enjoy the experience. Well, I sat on that goal for too long, and it never came to be. Fast forward to today: I came the closest I will to meeting that goal.”
‘Watching my husband die in front of me was a defining moment in my life, but it is not the moment that defines the rest of my life.’: Young widow says loss has taught her to ‘love harder than ever before’
“Six months ago, my whole world came crashing down around me. My husband suffered right in front of me. Losing him at a young age broke my heart, but it didn’t break my spirit.”
‘My brother came to me in a dream last night and told me he was in heaven. He isn’t in pain anymore.’: Mom of 2 children with rare skin condition loses youngest unexpectedly, ‘Nothing could be done. My baby was gone forever.’
“’They’re here!’ I saw my husband staring with a scary look on his face. Everything went out of focus. I walked to his bed, and I sank to the floor. He was gone. I screamed, doctors came running in. They performed CPR but because of his disease, it tore all the skin from his chin to his chest. They told me his heart stopped due to complications. I later found out he was given fentanyl during the flight.”
‘Be back in the morning, mom.’ He smiled. At 2 a.m. I awoke to police at my door. My beautiful son had been shot multiple times.’: Mom loses son to stranger’s act of violence, ‘I will live more fiercely for him’
“When she finished my transaction at the bank, she said, ‘I want to thank you for your energy and smile today. I wasn’t feeling very happy, but you raised my spirits.’ The tears came back again. It wasn’t me at all, but my beautiful son who had caused it. That night, we ate a meal together and he left to go out with friends. My daughter and I walked him to the door. On June 22, I saw his smiling face for the last time.”
‘One more thing,’ she said. ‘What?’ the pastor replied. ‘I want to be buried with a fork in my hand.’ His eyes welled with tears.’: Woman shares life advice, reminds us ‘the best is yet to come’
“In all my years of attending socials and dinners, I always remember that when the main course was being cleared, someone would inevitably lean over and say, ‘Keep your fork.’ It was my favorite part because I knew something better was coming, like velvety chocolate cake or deep-dish apple pie. The next time you reach down for your fork let it remind you, the best is yet to come.”
‘It’s time to consider a lung transplant.’ I was terrified of dying before I’d started living.’: Young woman with Cystic Fibrosis fights ‘to live the fullest life I can, in the time I am given to live it’
“My parents comfort me by saying, ‘We will get through this.’ I needed oxygen pumped into my nostrils at all times to breathe. I was afraid I was dying. I’ve seen videos where they interview elderly people on their deathbeds who are asked what they regret in life. Most people regret not having lived passionately, fulfilled and happy. I believed I would be one of them if I didn’t make a change.”
‘You look like you’ve been mauled by a gorilla. What happened to you?’ I lied. She didn’t deserve to know.’: Woman with terminal genetic condition embraces her scars, ‘Look how hard my body works to keep me alive!’
“I was leaving the grocery store. An older woman was staring at me. I felt the familiar rush of blood heat my cheeks and anger rise in my throat. Instead of asking questions about a body that wasn’t hers, she smiled widely. ‘I think I saw you in a magazine!’ I exhaled and laughed, confirming that she had. My scarring looks like burns. This is ‘the worst disease you’ve never heard of.'”
‘Sadie is 3. The clock will turn back. Each minute, we’re closer to the dreaded day she begins regressing.’: Newborn diagnosed with Childhood Alzheimer’s, ‘she is the greatest tragedy and blessing’
“Sadie’s birthday was such a bittersweet day. We saw all our hopes and dreams vanish. She is so smart, but we know this will all change soon. Before Sadie was born, we dreamed of her playing sports, helping her get ready for prom, college, and her dad walking her down the aisle. Today, we dream our sweet girl lives past the age of 14. We knew we had to fight this.”
‘Is this a nightmare?’ We said goodbye, not knowing if she’d recognize us again. Our sweet, perfect girl was dying.’: Mom ‘crushed’ by Childhood Alzheimer’s diagnosis, ‘We spoil her every day’
“5 hours after she was born, they needed life-flighted her to another hospital. ‘Your baby is breathing a hundred breaths per minute.’ I was numb. She stayed on oxygen for two months, but there was still no diagnosis. Her file read, ‘Unknown respiratory issues at birth.’ I felt hopeless for answers.”
