terminal illness

‘Well, it looks like you have a Duchenne boy.’ My stomach dropped. The more I read, the more I started to become numb.’: Mom shares journey of son with Duchenne’s Muscular Dystrophy, ‘You are in charge of your outlook on life’

“I was so angry. I was angry at the doctor who said, ‘You have a Duchenne boy but here’s a great camp we offer. It’s free!’ I was angry at the physical therapists who had worked with my son for years and hadn’t caught on. I was angry I had to wait over a month to be told my seemingly healthy son is terminal.”

‘I’ll be back in two hours. Wait for me.’ I squeeze you one last time, kiss your cheek, tell you I love you, and leave. I hate myself for going. I was supposed to BE THERE.’: Woman shares heartbreaking last days of mother with terminal illness

“This can’t be happening.’ You were supposed to wait for me. I jump out of the still-moving car and start running to the front door. I jump on the bed and cradle your head in my arms and sob something terrible. ‘Please come back! I love you.’ I cry and scream into my pillow after they take you away in that horrible, black body bag.”

‘They found a tumor in my eye.’ We were both 24 and just starting out our lives. So, I married him. Our wedding was the last time he saw me from both eyes.’: Young mom loses husband to Uveal Melanoma, ‘We survived by living in the moment’

“‘Ian is dying. There is cancer everywhere! Did no one tell you this?!’ We made it to Hawaii. In the back of my mind, I knew he wouldn’t be coming back. I had not only lost my husband, my soulmate, and the father of my two children, but I also lost our beautiful future together.”

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