“The doctors hit us with a heavy blow. ‘She won’t be able to walk. Ever.’ We tried to memorize how she looked with two little legs.”
‘She’s missing a bone in her leg.’ We had an impossible decision to make. I kissed her little broken foot goodbye.’: Mom amputates infant daughter’s leg, ‘She’s our saving grace’
‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis
“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”
