tics

‘I had to wear adult diapers. ‘Do you realize how stupid you look?’ He was mimicking my tics in front of the class.’: Young woman with Tourette’s Syndrome finally finds help, ‘I got my quality of life back’

“I felt stupid because no matter how much I tried, I couldn’t stop. I would spend an hour straightening my shoes, trying to get them ‘just right.’ My dad had to sleep on the floor next to my bed and I had to wear adult diapers. I was left with my self-esteem in shatters. I believed I was a naughty kid.”

‘Her pupils became dilated and dark. She started wetting the bed, baby talking. My once happy daughter became angry and rude.’: Girl diagnosed with PANDAS after months of turmoil, ‘No one knows your child better than you do’

“Her eyes turned dead and hateful, and she began laughing at things that weren’t funny. If she was forced to make a decision as simple as what shirt to wear, she would rage and scream, ‘I DON’T KNOW!!!’ I had to explain to her 5-year-old sister why her sibling didn’t want to play with her anymore. ‘She’s very sick right now.’ It started as the flu, but my insticts knew better. My daughter morphed into someone else. I had to fix this.”

‘He would literally fling his arms out from his body over and over again from morning until night.’: Parents shocked to learn of son’s PANDAS diagnosis

“We had absolutely no idea what was going on. His behavior was changing. He’d been in daycare since he was 12 weeks old and LOVED his school. Now he’d cling to us at drop off and require 15 hugs before we could – with him still screaming and crying- finally leave him. We assumed he was ‘going through a phase.’ I felt like we were ‘losing’ him.”

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