tonic clonic seizure

‘I heard an odd noise coming from my son. I looked over to see orange drool trickle from his mouth, his body rhythmically bouncing.’: Mom fights for answers to son’s undiagnosed seizures, ‘We will never stop trying’

“We had no cell service. There were no other vehicles on the road. We were alone, on a deserted highway, with our child who was quite likely dying, and we had no idea what to do. Nobody wakes up one day and thinks to themselves, ‘Today is the day my world will explode. Today everything is going to change and I’ll never get over it.’ But that’s exactly what happened.”

‘He was sleeping late. I became suspicious, pulled the blanket back. My son had been dead for at least 8 hours.’: Mom begs parents to spend time with children now after son dies in his sleep, ‘We wish we had more time’

“I started to call 911, but hung up. There was a more important call I needed to make. My husband at work. ‘Wiley’s dead.’ I couldn’t sugar coat this and didn’t have time to explain. I had approximately 4 minutes to explain to his twin brother that his best friend had died before 15 people swarmed our home. I asked him to pick a location where he would feel safe. Then, sirens.”

‘I got in the shower. ‘Dana, are you alright?’ My boyfriend heard a loud crash. He rolled me on my side, stuck his fingers in my mouth.’: Woman with epilepsy explains how she has ‘cheated death’ countless times

“My boyfriend heard a loud crash. ‘Dana, are you alright?!’ No response. He rushed in thinking our shower curtain simply fell. It did. But me with it. I began to choke as he rolled me on my side and stuck his fingers in my mouth. My guard was down. I woke up in the back of an ambulance.”

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