tracheostomy

‘DING DING DING.’ His heart rate dropped. All of the tests were negative. He was known as the ‘mystery baby.’: Woman births baby with Congenital Central Hypoventilation Syndrome, ‘Our lives would never be the same’

“The doctor laid him on my chest and instant panic came over my face. He was a shade of blue. I had done this five times before. I knew what a newborn should look like. He began to throw up and for a newborn, it was a lot! Why was this happening?”

‘I mouthed, ‘I can breathe.’ Dark voices started whispering inside my head. ‘I am scared to be a mother.’: Young woman survives near-fatal wreck, beats all odds, ‘My journey isn’t over but I’m starting to feel like ME again’

“I was in a medically induced coma for 17 days. I awakened to some very dark news. The doctors said, ‘You will probably never move more than 2 fingers.’ I am hearing this, but I can’t respond. I could not talk. I wondered why I was still alive. Prior to the wreck, I had long thick hair. They started washing it. Nurses were pulling out glass and other debris. I begged them not to cut it, as it was all I had left of my previous self.”

‘You must be so relieved. I bet you can’t wait to take her to Target.’ This medical hell would follow us home for years to come.’: Mother shares reality of daughter’s tracheostomy post NICU, ‘If I was going to do this, I’d become the best damn trach parent ever’

“If I was going to do this, I’d become the best damn trach parent that ever lived. The reality is, while our NICU chapter is over, this is far from normal. I can’t take Lily to the store, or anywhere, alone. My husband and I haven’t been alone in 4 months. One of us needs to be awake around the clock to care for her. There is no longer privacy in our home as our ‘special guests’ come in and out all day and night.”

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