Treacher Collins syndrome

‘They put him on my chest for the first time. The doctors did a double take and immediately took him back. ‘Treacher Collins? WHAT?’: Little boy with Treacher Collins Syndrome spreads kindness and acceptance

“FINALLY! I was induced, and FOUR days later, PJ came out! His dad and I cried tears of joy. Then the doctors did a double take and took him away. I thought he was the most beautiful boy, but I feared how he would be treated by other kids. He will always look this way.”

‘She wasn’t getting enough air. She was almost gasping and was quite purple. It was pure torture.’: Woman gives birth to baby girl with Treacher Collins Syndrome, ‘Her disability won’t hold her down’

“I noticed her ear looked small, but I chalked it up to the typical squishiness of a newborn. ‘So what? What is the point of showing me her differences?’ She has underdeveloped ears, cheekbones, and jaw that make her appear a little different than most of us. I just stared at her in awe, with nothing but love and admiration.”

‘Why isn’t anyone congratulating me? Sadly, my daughter’s arrival wasn’t celebrated.’: Woman gives birth to baby with Treacher Collins Syndrome, ‘Our normal is different, but I wouldn’t change it for anything’

“I was excited and ready to meet our baby girl! I realized something was not right. I said, ‘What is happening?’ Why is my husband so confused and scared? Why can’t my mom look at me? Why did my doctor step out? No one said a word. The silence tore me apart. I finally got a glimpse of Bella and… she looked ‘different.’”

‘I swallowed my own tongue and went blue. One week into school, the bullying began. ‘Why should I be moved and not them?’: Teen with Treacher Collins Syndrome urges ‘we are all unique and amazing in every way’

“I was born with no ears, no cheekbones, and a receding jaw. Food and bottles were thrown at me. It got to the point where they would trip me and pin me up against walls. I used to come home from school every day crying, but still the school did nothing. Instead, they moved me to another class. ‘Why should I be moved and not them?’ The bullies took over my life.”

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