‘This surgery is unlike the other 35. Do you understand we don’t know the effects?’ With a shaky hand, I signed my name on the black line.’: Woman with Ehlers-Danlos Syndrome undergoes life-altering surgery

“‘I’m ‘chickening out. I can’t do it.’ My dad was holding the door open when I took ONE step and froze. Something shifted in my back like it never had. I had some ‘colorful language’ and said, ‘Let’s go.’ Tears in my eyes, I signed my name on the black line. 8 hours later, I woke up screaming. ‘I can’t do this! Ow! The pain! Ow! PUT ME IN A COMA! I CAN’T DO THIS!’ The meds weren’t working. My mom was rushed in.”

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