tumors

‘I wouldn’t step out of the house in shorts or skirts because of the scars on my legs. ‘Why me?’ I was tired of crying out to God.’: Woman with rare Ollier’s Disease disorder and Scoliosis finds self acceptance, ‘I was handpicked’

“I became so caught up in trying to appear ‘normal’ I began to lose myself. At the end of the day, I felt like I was living a double life. I would often wear long sleeve shirts or jackets to hide my left arm. I wanted people to look beyond the scars and differences.”

‘A teacher called our daughter ‘lazy,’ put her outside, and forgot about her. We found her in full-blown panic.’: Mom creates ‘disability buttons’ for daughter with special needs, in tears after people ‘finally talk to her’

“My daughter called me from a store parking lot crying. She’d gone to the toy aisle and picked a Barbie. As she walked through the door, the security alarm went off. She was scared and didn’t know what to do. The security person came up to her abruptly and demanded a receipt. Her mind went blank. I watched videos online about a ‘special needs girl getting handcuffed’ at Walmart.”

‘Does it look too big?’ Our perfect, happy, healthy baby boy had a belly full of tumors. Cancerous tumors.’: Mom’s newborn diagnosed with Neuroblastoma, says ‘every little moment’ with loved ones is a ‘reason to celebrate’

“When our pediatrician comes back in, I see fear on her face. I feel the air leaving my lungs, my chest feels so heavy. She tells me his liver and spleen are enlarged, so enlarged the radiologist who read his X-ray asked, ‘How sick is this baby?!’ He’s not sick at all! He’s smiling and laughing, he’s perfect. I rush toward the elevator, a literal sobbing mess. How did I not know this? I thought I knew shock and devastation. I had no idea.”

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