“I was 21, almost done with my senior year of college. These were supposed to be the best years of my life, yet every day I felt sick and exhausted and no doctor could tell me why. I was told it was ‘all in my head.’ I lost friends because no one could understand. Soon, I was withdrawing from my semester from a hospital bed.”
‘The doctor said, ‘It’s just teenage girl stuff.’ I was living with everyday pain as if it were normal, forced to accept feeling this way forever.’: Young woman shares journey to Ulcerative Colitis diagnosis, ‘My life is just beginning’
‘I was accepted into Juilliard. I’d worked SO hard, and suddenly I couldn’t even do what I was there to do. I was forced to STOP.’: Musician details struggle with connective tissue disease, ‘My health became priority’
“I practiced 2 hours the day before, but when I got to class I couldn’t remember ANYTHING. I ran out of the classroom and cried. I HAD to acknowledge my pain.”
‘The doctor said, ‘How do you want to leave this hospital? With a poop bag or in a box?’ I denied consent 8 times.’: Woman with ulcerative colitis, ostomy bag says ‘you only get one body, love it!’
“I’d spent so long thinking no one would ever love me and then when I finally found the perfect, most precious man, I had to get a poo bag? I wanted to scream and cry and throw things. On my 26th birthday, I was looking death in the face.”
‘I blurt out, ‘I want the surgery.’ I’ll never forget the look on his face. What kind of patient asks for a major life changing surgery? I kept replaying the conversation my mother and I had.’
“My mother was my best friend and I couldn’t accept she would be gone soon. I refused to discuss it with her until one day she said to me ‘You can ask me anything you want.’ That was all it took.”
