undiagnosed disease

‘He’ll have severe disabilities.’ Each smile is priceless. We have an even greater appreciation for the ‘little things.’: Mom advocates for son with undiagnosed condition, ‘He’s one of a kind’

“Our 6-week-old son lay in a hospital bed next to us, all hooked up. The prognosis was grim. Watching your child have seizure after seizure, knowing there’s nothing you can do, is gut-wrenching. He might not understand what’s happening, but he’s so strong.”

‘My sister called. ‘Rachel is thirsty. I think she has heat exhaustion.’ She stopped breathing. I was on the phone as they started CPR.’: Mom loses daughter to undiagnosed Type 1 Diabetes

“She was moodier than usual, but she was turning 12. ‘Hormones, right?’ She started complaining about leg cramps and throwing up after running. When the coroner’s office called, we were told, ‘You missed the symptoms.’ Rachel was gone, and she was not coming back.”

 Share  Tweet