unique

‘None of them had seen a case like Dominic’s. The amount of birthmarks was shocking.’: Mom gives birth to son with rare skin condition

“I willed my legs awake from the spinal tap, like Uma Thurman in ‘Kill Bill,’ and then I physically dragged myself from my bed to a wheelchair to see him. I demanded a nurse take me to him. He was blue, his skin covered with deep purple spots. He wasn’t crying. The whole room was especially quiet. They had no clue what was going on with his skin.”

‘Will she survive? Will she breathe?’ This was it. There was no turning back. I heard her loud cries.’: Mom births baby with Lymphatic Malformation, condition makes her ‘love her little girl so much more’

“I’d carried her 9 months and soon doctors would be taking her away from me to save her life. ‘When can I see my baby?’ I asked the nurse. ‘Not yet.’ I was finally able to gaze at her through a plastic incubator. There were wires all over her new skin and into her tiny little nose, tape securing them down. But nothing could ever steal away what she was. Beautiful.”

‘Her skin hardened within seconds. It began to split. My husband’s silence scared me.’: Mom says daughter born with Harlequin Ichthyosis is ‘beauty in the purest form’

“He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’ Broken is the only way to describe the feeling as they placed her in my arms. They had never seen anything like this. She was fine; everything was perfect, and then it wasn’t. But Anna was meant for me, and I for her, and together, we will show the world what true beauty is.”

‘You are my mom and you need to come get me.’ She was never going to be alone again.’: Mom surprised by twin pregnancy after adopting child with Down syndrome, now has 3 kids with Down syndrome

“‘We think your baby has Down Syndrome.’ She was blessing, not a burden. I found the lost, sad eyes of a 4-year old waiting in an orphanage. She too had Down syndrome. ‘What if this was Bree’s fate?’ We had no idea it was going to be the start of such an incredible journey.”

‘Mommy, I’m ugly.’ She was staring at a photo of herself, sobbing. She tugged at her hair, begging it to grow.’: Mom says ‘genetics’ caused daughter’s lack of hair, paints it pink to prove she’s a ‘beautiful princess’

“My daughter who was just skipping about was now shouting, ‘Please take me home!’ I know her struggle because I, too, had no hair. I wanted to make her feel beautiful, so I bought a pretty hair dye. She anxiously giggled as we waited for the big reveal. When I finished drying it, she gave me a look that said, ‘Thank you, Mama.’ I’ve never seen her smile so big.”

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