up syndrome

‘How could this happen? I thought things like this only happened to older moms or if it ran in your family.’: Mom of Down syndrome baby finds community of support, ’She was made for us’

“’She has a few markers that are consistent with Down syndrome.’ I felt like someone told me my entire family had just died. I felt like I was in a nightmare. ‘I’m not equipped to handle this.’ I listened to my nurse talk about her twin brother with Down syndrome. I couldn’t believe it. That was the first moment where I felt, ‘Maybe I can do this.’”

‘I have to tell you something. I’m so sorry.’ I burst into tears. I hated others being sad about our baby.’: Parents shocked by Down syndrome diagnosis after signing paperwork to not do genetic testing, ‘We are keeping the baby’

“This embryo was a fighter from the beginning – it took. Then I got a life changing phone call. ‘Your baby has Down syndrome,’ the nurse informed me. WHAT? We signed paperwork saying we DIDN’T want any blood tests. The nurse, in an effort to ‘bond’ with me, told me how she got pregnant naturally with twins. One of the twins died, and the other twin had Down syndrome, so she terminated. ‘We would have taken that baby,’ my husband replied.”

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