ventricles

‘If this ruptures, it will kill your wife and baby.’ My wife looked at me. ‘Save the baby.’ Our excitement turned to dread.’: Mom births baby with Complex Congenital Heart Disease, dad in awe of son’s ‘strength, resilience’

“Two months before our due date, I heard my wife scream, ‘Brian, come quick!’ I hurried upstairs to find her crouched on the bathroom floor, groaning in pain. After hours in the waiting room, I was called back to see her. Even under all the stress and exhaustion, she looked beautiful. ‘Can you handle a child like this? With heart defects?’ We both answered, ‘Yes.’ We never felt so scared in our lives.”

‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’

“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”

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