vision loss

‘Help me, mama. Pleeeease, help me!’ Covered in sweat, he escaped the doctors. That was it! I was DONE.’: Boy beats cancer 3 times, loses vision, ‘he wasn’t supposed to survive his first day’

“The doctor looked me square in the eye. ‘Brain tumor.’ WHAT?! I looked at my baby playing with Tonka trucks. ‘I’m sorry, but I think we both knew it.’ WHAT? Are you freaking kidding? No, I didn’t! I sat in the pre-op area signing consent forms. I wrote in large letters, ‘NO STUDENT OR RESIDENT IS TO TOUCH HIM.’ Never again was I going to just accept what a doctor said without question.”

‘What did I do wrong to cause this sweet blonde-haired, blue-eyed boy to suffer like this?’ He woke up so smiley that morning. My husband and I were silent. ‘It’s time,’ the team said. The doors shut behind him.’

“Ten minutes went by…then 30 …then 45. I was in a total panic. Instead of the screen showing he was waking up from anesthesia, it said he was still in the O.R. There was a look of concern in his surgeon’s eyes. ‘For some reason, half of his skull expanded faster than the other.'”

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