Waardenburg syndrome

‘He didn’t pass his mandatory newborn screening.’ I was angry we hadn’t gotten the child we’d planned for. Woman gives birth to son with Waardenburg syndrome, ‘he teaches you more than you ever imagined’

“We were told, ‘Bring him back in a few weeks to re-test.’ When Cooper was diagnosed as deaf, I was pissed. I refused to even say the word for a few weeks. I hated it, as if hating a word have any effect on what we were going through. Now I don’t see it when I look at him. I see my perfect, perfect baby.”

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