webbed hands

‘I don’t want any more operations!’ It was so hard on me, I decided enough was enough.’: Woman with Apert Syndrome wants people to know, ‘‘I have a great personality if people take the time to get to know me’

“I was about 6 or 7 when I truly realized I was different from other kids. I looked different. There was a lot of staring, whispering, and pointing fingers from other people, as they had never seen anyone like me. I sometimes feel lonely and would love to have more friends.”

‘The doctor said, ‘I don’t want you to think everything is okay. It’s not. Your baby’s hands are fused together,’ then left the room.’: Mom to son with Apert Syndrome urges for kindness, ‘It’s the best gift you can give’

“‘I’m sorry, but he will definitely have mental issues and live in a home.’ The doctor told me to go home. The second I made it to the car, I lost it. I was crying uncontrollably. I called my husband, but I couldn’t get anything out. ‘Ashley, I need you to PULL OVER. I’m coming to get you.’ I couldn’t, I was so distraught. I just wanted to get home where no one could see me.”

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