wound

‘WHAT ARE YOU NOT TELLING ME?!’ We held her in our arms as she drowned in her own lungs. All I could do was love her.’: Mom mourns loss of daughter to Spinal Muscular Atrophy 

“One phone call doubled her life. As I stood there with my husband, holding our 21-month-old baby girl, I felt helpless. I helped bring her into this world, and if she had to die before me, I wanted to be there as she left it. The moment her heart stopped beating, I wasn’t sure mine would keep going. It did. I questioned why. I’d just spent 2 years of my life being a full-time mom and caregiver, and in a moment, everything changed.”

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