‘We’ve got the eyelash extensions. We’re dribbling collagen into our coffee. We’re thinking, ‘Maybe I just need to drink more water.’: Woman urges ‘separatewho you are, from how you look’

“These products…these augmentations…these makeup-tricks…aren’t doing what we want them to do. Because what we WANT them to do is make us look 24 again. We’re years away from becoming ‘cute for their age.’ For their age. Our identity is soul-crushingly wrapped up in things that can be taken away from us.”

‘The doctor said, ‘Not to worry. It’s just the flu.’ His throat started fluttering. They worked feverishly on his little body. I couldn’t watch.’: Mom urges ‘we need to do better’ after losing son to flu

“I looked at the nurse with tears in my eyes. ‘That little boy is the only one I have.’ His eyes rolled back. The physician started sobbing. I held up my hand to push her away. ‘I need you to come in here. I need you to talk to your son.’ I took Joseph’s hand, looked into his beautiful face, and begged him to stay. ‘He’s going to just wake up. He’s going to wake up, and we’ll go home.'”

‘I cried and said, ‘Thank you.’ As I restrained my wailing 5-year-old, she finally found the vein. We both left bleary-eyed and spent.’: Special needs mom says ‘these little traumas add up in our hearts’

“These little traumas are hard to communicate. They remain mostly unseen. But they don’t leave us. We wouldn’t change our kids for anything. We wouldn’t change how they have changed us. But, damn, sometimes we wish we could lighten their loads.”

‘If we send our kids to school, we’re ‘selfish.’ If we keep them home, we’re ‘living in fear.’ We’re offered strong opinions from others not even in our position.’: Mom urges ‘there is no right decision’

“Some of us have already decided. For some, it was decided for us, and some, like me, are sitting right smack dab in the middle of indecision. We’re offered strong opinions from others not even in our position. And if we’re honest, we’re over it.”

‘How do you send a child who doesn’t understand personal space, let alone social cues, back to school?’: Special needs mom says ‘I trust we will all make the best decision for our family’

“What do you do when you have a child who explores the world around him by touching and feeling everything he sees? Last night, I broke down. All the thoughts and emotions came pouring out of me on my bedroom floor. As a parent of a child with a disability, NOTHING can prepare us to make the type of decisions we are all abruptly facing.”

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