‘That looks intolerable. I can’t stand it.’ It looked like I’d been burnt in a fire. I quickly pulled my shirt sleeve down.’: Woman puts career on hold to heal psoriasis, find self-love

“I was oozing and bleeding. My co-worker said, ‘Are you doing something about it?’ I said, ‘Yes, I’m getting it treated once I finish our deadline first.’ She spoke the words I knew in my heart: ‘If I were you, I would go now. Health should be your priority.’ I left my rising career in a prestigious design firm in San Francisco.”

‘You’re imagining the sensation.’ My right hip snagged. My leg buckled beneath me. Pain shot into my thigh like electricity.’: Woman finally diagnosed with Ehlers-Danlos Syndrome, ‘They didn’t believe my pain’

“My doctor asked, ‘Are you having substance abuse issues?’ I was taken aback. I told her no. I was very hesitant to take any medications, much less for pain. ‘Leave a urine sample on the way out.’ She ran a full drug screen without telling me. It came back clean, but it didn’t matter. She didn’t believe me. She didn’t believe my pain. I was heartbroken.”

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