‘We’re so lucky your dad still has his job.’ I don’t know how we’ll do it another day, another week, another year.’: Mom of special needs son says ‘being his caregiver is a whole life job’

“Most children don’t depend on their parents for everything their entire lives. We always worry about illness. He’s nonverbal, cannot walk, has a feeding tube, and recently has been diagnosed with a seizure disorder. But then, I look at Christopher and smile.”

‘Why are all the other kids her age able to turn and look at their parents?’ I chalked it up to me doing something wrong.’: Mom to daughter with autism says ‘find love in your heart not to judge’

“I sat there, trying to hold back my tears. ‘What does this mean? What about her unborn sister? Will she have friends?’ I couldn’t take it anymore. I just sat there and let the tears flow down my cheeks as my daughter stood in between my legs. I stroked her hair, feeling so afraid for her future.”

‘I kept getting UTIs. My male doctor said, ‘Do you think the pain might be ALL IN YOUR HEAD?’ I was mortified.’: Woman with chronic urinary tract infections urges ‘you are not alone’

“I’d receive a 3-day course of antibiotics and be sent on my way. It would clear up, but come back with vengeance. I was told it was ‘just because I was WITH my boyfriend.’ Fair enough, sex can be a cause, but what did other people do? Stay single for the rest of their life? I was at a loss. All the doctors suggested I was exaggerating.”

‘Are you joking?’ My doctor had a very serious look. ‘Pregnancy is not something I’m allowed to joke about.’ I’d been taking birth control pills.’: Mom births warrior baby with ‘sweet cleft smile’

“I said goodbye to his sweet, wide smile and tried to hold it together as the nurse carried him away. The second I got to the café, with my COVID-19 mask under my chin, I ugly cried into my sandwich. I texted my best friend, ‘I’m going to puke or soil my pants.’ I was a ball of emotion.”

‘We found our phones with several missed calls, texts. ‘Congratulations! You’ve been matched with a baby boy…’ We immediately melted into tears.’: Couple adopt baby with Down syndrome, ‘He was absolutely worth the wait’

“A fat stack of personal information – copies of driver’s licenses, tax returns, medical records – everything we are taught to keep confidential, was GONE. ‘Lost’ in the mail. 3 weeks later, I got a call from our social worker: ‘You’ll never guess what just happened!’ We knew raising a child with special needs would bring challenges, but we also knew it would be a huge blessing.”

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