‘None of them had seen a case like Dominic’s. The amount of birthmarks was shocking.’: Mom gives birth to son with rare skin condition

“I willed my legs awake from the spinal tap, like Uma Thurman in ‘Kill Bill,’ and then I physically dragged myself from my bed to a wheelchair to see him. I demanded a nurse take me to him. He was blue, his skin covered with deep purple spots. He wasn’t crying. The whole room was especially quiet. They had no clue what was going on with his skin.”

‘Both of our babies had cancer. In 2 weeks, our 6-year-old daughter and 4-year-old son began the fight for their lives.’: Mother describes ‘worst day’ of her life after children diagnosed with medulloblastoma

“‘I’m sorry, but we found a mass in your daughter’s brain.’ I thought that would be the worst day of my life. Little did I know, only 13 days later, THAT would actually be the worst day of my life. In a different ER, a few floors below from where my daughter was, another doctor pulled a different curtain, looked at my husband and me, and said, ‘I’m sorry.’ Time stopped at that moment.”

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