“Over the following weeks, fishing clumps of hair from the drain became part of my routine. People commented, ‘What a waste of a body.’ This disease isn’t cruel, the stigma is.”
“Over the following weeks, fishing clumps of hair from the drain became part of my routine. People commented, ‘What a waste of a body.’ This disease isn’t cruel, the stigma is.”
“The bad seemed to outweigh the good. Hospital stays, lung transplants, endless medications, isolation. The first thing her team said was, ‘Don’t believe anything you read online.'”
“You won’t have all the answers. You won’t always do what’s right or what’s best for them. But you should ALWAYS respect and honor their lost parent.”
“You’re teaching them if their body doesn’t look or function like most do, then it’s BAD.”
“Now, it wasn’t just about him and me. It was about her, a little girl with a huge void in her life. I kept thinking, if this was my little girl, what would I want for her?”
“I yelled how proud I was so they could hear me through the window and made ‘I love you’ in sign language. I didn’t need him to get in trouble. I needed him to simply UNDERSTAND.”
“The walls of my home don’t boast a college diploma. My resume is short…VERY short. The infinite loads of dishes I wash have never garnered a medal, the hours I spend vacuuming never secure me a promotion. Forbes won’t be coming out with an article about us anytime soon.”
“They pulled out my eardrums. ‘You’ll be permanently deaf by 30.’ I was devastated.”
“It’s not RUDE to say no.”
“A woman rushed over to us, frantically asking, ‘Are you okay?’ I stammered, ‘What happened?’ My husband was screaming in a way I’d NEVER heard anyone scream.”