‘I think it’s happening again.’ I tried to bury my fears, but couldn’t deny it. Lightning had struck twice.’: Sisters diagnosed with ‘ultra rare’ infantile spasms, ‘They share a deep connection’

“We were sent home with shattered dreams and heavy hearts. They didn’t make eye contact and ate through a tube. Doctors told us we’d have to wait for science to catch up. Their ‘Good luck’ as we walked out the door felt like a kick in the gut.”

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