‘I’m sorry, she is non-viable.’ Daddy held her so very close, tears in his eyes. He knew it was time. She gave us 60 minutes in pure heaven.’: Mom loses newborn to Bilateral MCDK, ‘She taught us nothing but pure love’

“I remember the drive to the hospital, telling Jose I wasn’t ready, that I couldn’t do this, and just crying. He grabbed my hand and told me, ‘Baby, no matter what happens today, no matter how long or short her life is, she will know if nothing else LOVE.’ Scared and shaking, I received her on my chest. Our 60 minutes in heaven started.”

‘There was no sugar-coating it. Her brain was bleeding. We we warned, ‘She may end up blind, deaf, or mute.’: Daughter born with hydrocephalus, ‘I find joy in every single second’

“She’s had 100 brain surgeries. I’ve sat alone in a waiting room in the middle of the night after signing consent forms for emergency surgery, not knowing how she was going to be when she made it out. If she made it out. But it’s obvious she’s not giving up.”

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