‘The machines are no longer prolonging his life. If you want, you can hold him in your arms.’ I held him close to my heart, as he took his last breath.’: Mom honors son lost to rare GACI disease

“The neonatologist looked up at us. ‘I am really sorry to be the one that has to tell you this, but…’ I felt a lump in my throat and tears began to flow. I remember ripping off my mask because it was so hard to breathe. ‘Your son Devraj is incompatible with life.’ The entire room was slowly starting to blur.”

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