“This blew my whole mind. I’ve dated this man, lived with him, even had a child with him and NEVER knew. I never caught on. I haven’t been able to get ahold of him, I’ve been worried sick. He is currently using and living in his truck. My son runs around screaming, crying for his daddy. If you ever read this A.J. we miss you, we love you, and we will never give up on you.”
“Before I left, I turned back. I could see the heartbreak on my dad’s face. I was yelling bloody murder through the halls. They put my legs up. All I remember were bright lights and hearing, ‘Push! Keep pushing! He’s almost out!’ They failed to catch him. I finally got a call from my OB. She said her condolences. ‘I’m so sorry, I never predicted this.’”
“I stuck them in the freezer for one of those relentless southern days. ‘They’re all the same size, don’t argue,’ I told them. I had just kicked off my boots and laid back when I heard a tiny, faint cough. Just one. I was instantly on my feet assessing him. There it was. The tiniest hive. Right in the corner of his precious cheek.”
“The bonus is, it’s not contagious. You wouldn’t expect the person with a really bad flu to get up and do stuff, no way! So, tell them to rest up. Lay out in their pajamas. Surround them with pillows and things that make them happy. You would never tell them to snap out of the flu!”
“People often feel awkward asking questions about my daughter. Penny gets sidelined from activities and events because they don’t know how to welcome her. The message of inclusion is, ‘We want you here with us.’ But belonging emerges from a deep desire to not just include the ‘other,’ but to love and be loved.”
“I’m literally doing the bare minimum by loving my wife for who she is, ‘imperfections’ and all. Sure, things look and feel slightly different — but in the grand scheme of things, nothing changed. The reasons I fell in love with her had nothing to do with her body.”
“I woke up with a sore knee. We ignored it… until the pain became unbearable and was spreading. It all happened so fast. I was too overwhelmed to be scared. However, I was confused. We all were. The tricks I used to gross my friends out ended up being a piece of the puzzle. Hyper mobility, one of the most obvious symptoms of EDS.”
“The driver accidentally veered off the road. We crashed into a steep ravine, and were engulfed in flames. I immediately knew, I’d have to run through the fire and get burned. I chose to run. I crawled up the ravine and ran as fast as I could, screaming for my buddies. Sadly, my buddies never made it.”
“‘Why my son?! Why me?!’ We went home and packed up his clothes, toys. His grandparents held onto everything else. We couldn’t bear to. But we destroyed the Rock ‘n Play he died in. I’ve seen news stories about their recalls. Of course, it makes me wonder if that’s what happened to my son. We will never know. Within weeks of his passing, I was pregnant. Intentionally. Family was concerned. I didn’t care.”
“Just days before you died, you said to me, ‘We are so blessed.’ My perfect love, my angel. Yes, we were. In the cruelest twist of fate imaginable, we never got to embrace and celebrate the beginning of the rest of our lives together. I will carry the love we shared with me forever. I will find you and marry you in the next lifetime, and the next, and the next, and the next.”
