“I woke up with a sore knee. We ignored it… until the pain became unbearable and was spreading. It all happened so fast. I was too overwhelmed to be scared. However, I was confused. We all were. The tricks I used to gross my friends out ended up being a piece of the puzzle. Hyper mobility, one of the most obvious symptoms of EDS.”
“‘Why my son?! Why me?!’ We went home and packed up his clothes, toys. His grandparents held onto everything else. We couldn’t bear to. But we destroyed the Rock ‘n Play he died in. I’ve seen news stories about their recalls. Of course, it makes me wonder if that’s what happened to my son. We will never know. Within weeks of his passing, I was pregnant. Intentionally. Family was concerned. I didn’t care.”
“Just days before you died, you said to me, ‘We are so blessed.’ My perfect love, my angel. Yes, we were. In the cruelest twist of fate imaginable, we never got to embrace and celebrate the beginning of the rest of our lives together. I will carry the love we shared with me forever. I will find you and marry you in the next lifetime, and the next, and the next, and the next.”
“When I first met him, I was cleaning tables at McDonald’s. He was so sexy and had the most beautiful blue eyes I’d ever seen. And he just HAD to hold them on mine. We parted ways, but later I found him on social media. I essentially moved in that first night.”
“’Can you leave? We are having girl chat.’ I left and sat alone in the field. Teachers would laugh when I’d tell them I was being bullied. I cried and prayed to God, ‘Please let me wake up and be a girl.’ This is me. I am a woman.”
“‘Have you been notified of that boy’s roommate at the group home?,’ he asked. ‘We have not,’ I replied. ‘Would you be willing to meet him?’ 3 months later, he was moving in with us hours before his first day of high school. We found out I was pregnant by surprise. ‘This is crazy. We can’t do this, right?’ We were going to have 2 babies and a teenager with PTSD. Less than a year ago, we had no kids.”
“When I’m in public, I’m constantly apologizing for our family. I whisper, ‘Shh, baby. No shouting please.’ But yesterday, a grandmother-type woman stopped me in my tracks.”
“I can’t ever prepare myself for the times my son will find her picture and ask who she is. It’s someone he should know. Once I catch my breath, I tell him the same story I tell him every time.”
“On the last trimester of my pregnancy, I talked with the Dean. ‘I don’t have any support system near me, my husband works full time and takes night courses. I’m supposed to graduate next year. I don’t want to fall behind.’ She looked me in the eyes and said, ‘Tell me who your professors are next semester. I will talk with them personally.’”
“If Rachel did not survive this battle, I had to be there for her children—Sophia and Henry—who meant the world to her. I had no choice but to be healthy. While my sister could not control her cancer diagnosis, I could control the food I was putting in my body every day.”
